About 1 in 12 Canadians, two-thirds of them children, are affected by a rare disorder. But because each disease affects only a small number of individuals, understanding and expertise may be limited and fragmented across the country. Canada’s Rare Disease Strategy proposes a five-point action plan that will address unnecessary delays in testing, wrong diagnoses and missed opportunities to treat.
1. Improving early detection and prevention,
2. Providing timely, equitable and evidence-informed care,
3. Enhancing community support,
4. Providing sustainable access to promising therapies and
5. Promoting innovative research
November 6, 2017 - November 7, 2017
Hyatt Regency Toronto, 370 King St W
A Moon Shot for Rare Disorders: Leave No one Behind Objectives of Conference Create a shared understanding of the patient journey and what “good” looks like Mobilize all stakeholders around common vision for Rare Disease Canada Create a guiding framework to map current resources, define gaps, identify opportunities and challenges, and prioritize needsDraft Agenda Special group room rate $210 has been extended to October 16, 2017 Hotel Booking: https://aws.passkey.com/e/49287903 * To receive CORD member rates you must login Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.