About 1 in 12 Canadians, two-thirds of them children, are affected by a rare disorder. But because each disease affects only a small number of individuals, understanding and expertise may be limited and fragmented across the country. Canada’s Rare Disease Strategy proposes a five-point action plan that will address unnecessary delays in testing, wrong diagnoses and missed opportunities to treat.
1. Improving early detection and prevention,
2. Providing timely, equitable and evidence-informed care,
3. Enhancing community support,
4. Providing sustainable access to promising therapies and
5. Promoting innovative research
March 9, 2016 - March 10, 2016
Sheraton Ottawa Hotel: 150 Albert Street, Ottawa, ON
Rare Disease Day Conference and Gala NEW Dates, Updated STRATEGY: March 9-10, 2016! While Rare Disease Day is officially being held on February 29th, unfortunately, Parliamentary sessions are not. CORD believes it is critically important for Canada’s political leaders to be part of Canada’s Rare Disease Strategy. Therefore, we hope everyone will join us in Ottawa on March 9-10, 2016 to celebrate Rare Disease Day with a renewed commitment to a Rare Disease Strategy, recognition of Canadian success in rare diseases, launch of Rare Alliance Canada, and an awesome gala celebration. March 9-10 will be the MOST significant Rare Disease Day in Canada’s history. We need you to help make Canada’s Rare Disease Strategy a reality for 2.8 million Canadians. New Updated Draft Agenda Rare Diseases, Rare Women, Rare Commitment Gala Please join us in recognizing these “Rare Women” and other “Rarity Heroes” at our Rare Disease Day Gala in Ottawa on March 9. Exceptional women from the Parliament, Ministry, and community have been chosen for public acknowledgement at this event. Awards will be presented at the Rare Disease Day Awards Gala starting with a cocktail reception at 6:00 pm followed by dinner at 7:00 pm, with entertainment from the Cross Town Youth Chorus. * To receive member rates you must login at the top right hand corner of raredisorders.ca Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.