Welcome to the Canadian CAPS Network

On the Canadian CAPS Network (CCN) you will find all you need to know about CAPS (Cryopyrin-Associated Periodic Syndromes), from learning about what CAPS is, to who gets CAPS and what causes it, as well as useful facts about CAPS symptoms and treatments.

Start here to learn more about the disease and then, if you think you have CAPS, use the information from CAPS Family Network to help you talk to your doctor. It is important that you speak to your doctor to confirm if you are suffering from CAPS. Your doctor can provide current treatment to help relieve symptoms, and in some cases eliminate them. » Learn More

CAPS Symptoms
The symptoms of all types of CAPS are a result of the body's reaction to inflammation. The body responds to inflammation with soreness and swelling. » Learn More

CAPS Treatments
With CAPS Family Network you will find all you need to know about CAPS diseases, from learning about what CAPS are, to who gets CAPS, what causes CAPS as well as facts about CAPS syndromes and treatment.
» Learn More

• Overview
• About Canadian CAPS Network
• About CAPS
• Treatments
• FCAS - Facts, Symptoms and Patient Story
• MWS - Facts, Symptoms and Patient Story
• NOMID - Facts and Symptoms

• Download the CAPS Patient booklet
• Download the CCN Terms of Reference
• Download the CCN Membership Form
• References

FCAS – Familial Cold Autoinflammatory Syndrome
It can also be called FCAIS or FCU, which stands for Familial Cold Urticaria. People with FCAS usually start having symptoms from birth. Occasionally, symptoms may start later in childhood. Symptoms of FCAS can begin after a person is exposed to cold temperature. » Learn More

MWS - Muckle-Wells Syndrome
MWS was first recognised in a family in the early 1960s by 2 doctors named Thomas James Muckle and Michael Vernon Wells. Like FCAS, people with MWS usually start having symptoms from birth. Occasionally, symptoms may start later in childhood. Symptoms can occur without any obvious reason.
» Learn More

NOMID - Neonatal-Onset Multisystem Inflammatory Disease
NOMID can also be called CINCA, which stands for Chronic Infantile Neurological Cutaneous Articular Syndrome. NOMID/CINCA is the most severe type of CAPS. People with NOMID/CINCA almost always start having symptoms from birth. A doctor may diagnose NOMID/CINCA quickly in a newborn because symptoms are often more noticeable than in FCAS or MWS. » Learn More