Members
NOMID stands for Neonatal-Onset Multisystem Inflammatory Disease. NOMID can also be called CINCA, which stands for Chronic Infantile Neurological Cutaneous Articular Syndrome.
NOMID/CINCA is the most severe type of CAPS. The symptoms of NOMID/CINCA listed below are similar to MWS symptoms, but they are felt all the time.
These symptoms include:
- A rash that keeps coming back
- Fever
- Feeling weak or tired
- Pain in the joints
- High protein levels in the kidneys
- Headache
- Chills
- Sore or red eyes
- Pain in the muscles
- Gradual loss of hearing
Possible additional symptoms:
- Gradual loss of eyesight
- Mental difficulties
- Swelling of the knees
Related Pages:
- Overview
- About Canadian CAPS Network
- About CAPS
- Treatments
- FCAS - Facts, Symptoms and Patient Story
- MWS - Facts, Symptoms and Patient Story
- NOMID - Facts and Symptoms
- Download the CAPS Patient booklet
- Download the CCN Terms of Reference
- Download the CCN Membership Form
- References
NOMID
It is clear to parents of children with NOMID/CINCA how much they suffer. From the moment they are born, it is constant battle to keep NOMID/CINCA from getting worse. Treatment can help symptoms to some degree, but they never completely go away.
NOMID Symptoms
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Swelling of the knees in NOMID/CINCA |
People with NOMID/CINCA almost always start having symptoms from birth. A doctor may diagnose NOMID/CINCA quickly in a newborn because symptoms are often more noticeable than in FCAS or MWS
NOMID/CINCA can be disabling and, without treatment, some cases may result in death. Treatment can help symptoms to some degree, but they never completely go away.
Swelling of the knees in NOMID/CINCA It is clear to parents of children with NOMID/CINCA how much they suffer. From the moment they are born, it is a constant battle to keep NOMDI/CINCA from getting worse.
For patients with all types of CAPS, but especially for those who need support for NOMID/CINCA, there are organisations that can help.